We had a great visit from the area ALS Walk for a Cure representative today. We were excited to hear that 90% of the donations received go directly to things outside of admin. The visit was related to the fact that our team has raised over $6500 so far. In fact, we are currently in second place. Not too shabby,eh! I’ve heard folks say ” Second place is first loser “. Not so in this case! Everyone wins! I will admit that it would be special to hit $10,000 our first year as a team.
I learned today that in the state of Florida there are between 1500 and 1600 ALS patients at any given time. The roster is constantly changing. For obvious reasons. I still believe that many of the folks that receive a ALS diagnosis can and should live long and full lives. Even though I cannot do the things that I used to do, and believe me when I say I led a very active life, I have shifted my focus. This certainly doesn’t mean I’ve lost any passion for the things that I loved to do. No Way! Arboriculture, teaching, safety, woodworking, traveling, meeting new people, are still very important to me.
I find my self spending an ever increasing amount of time, educating myself about my desease and it’s complex set of challenges. Ive learned that my progression of symptoms, in their speed as well as their order of occurrence , happens to less than 5% of PALS. I’m just special that way. I’ m not going to waste what I learn purely for my own edification though. I plan to spread the word to whom ever will listen. You see, knowledge is power, and it’s going to take a lot of both to change the disheartening statistics of this desease.
I appreciate all of you that visit here, too read my ramblings. I hope you can glean some small part of what it is I am trying to convey. I love to read your responses each day. Keep them comin’.
Question for the day: “Does this wheelchair make my butt look big”?
Awesome ain’t easy….but it ain’t impossible either. Be Awesome!
Have a great day! I am.