Back in October 2012 I started experiencing muscle twitches in my left bicep. I didn’t think much of it. By December the twitches had moved into my abdominals also and were a little more noticeable. At the end of January Lita and I joined 14 other family members on a cruise to celebrate my father-in-law’s 80th birthday. Upon returning I went to see my physician to talk to him about what I was experiencing. He did a few tests and showed a bit of concern and recommended I see a neurologist. It took a few weeks to get an appointment but I finally got in. After two visits and several tests that Dr. recommended I go to Shands in Gainesville for a second opinion. Luckily I have a family member that is doing his residency there and with his help got into see the head of the neurology department. On April 18 I received my diagnosis. I had ALS. The following week I went to USF to the ALS clinic. The third neurologist concured. So since February I progressed from muscle twitches or fasciculations to difficulty with mobility, and breathing. I am on a drug called Rilutek which hopefully will slow the disease down. For the past month I’ve been using a ventilator at night to help me sleep as it was difficult to breathe while laying down. While standing or sitting up my diaphragm is working at about 78%. While lying down it’s only working at about 36%. I travel around the house using a roll later walker but when I go out I sit in a wheelchair and Lita pushes me around. Yesterday we started shopping for a power chair. So that’s where I’m at. I will try to blog each day with my thoughts and an update with what’s going on with me. the purpose for this blog is to let me vent along with letting others comment. So if you have something to say let’s hear it. I want everyone to know that I have good days and bad days so I make no promises as to what I might have to offer. I’m sure as time goes by you may learn something about me you didn’t know. I may learn something also.